Aug 28

Creative Life of Poet with Parkinson’s

 

The Positive Trade-Off

Janice Rowan

Janice Rowan gave up her love of teaching preschool children due to the progression of Parkinson’s disease. She turned retirement from her 26-year passion to what she calls the positive trade-off—when one is prepared to work with and not against PD.

In 2009, she noticed her handwriting getting smaller, and she took longer to complete daily reports. Her right hand had a slight tremor. These symptoms led her to a neurologist and a Parkinson’s diagnosis. She continued to teach six more years before retiring in 2015 at age 62.

Janice needed to write children’s stories to fill the void and to heal the loss from giving up her beloved career prematurely. She found encouragement when she needed it the most. Ironically, her cheerleaders were living under her roof. Her two grandchildren, Victoria and Lucas, inspired her as she cared for them while their mum completed university studies. One of her first projects My Nana is a Mover and a Shaker was designed to explain Parkinson’s in a storytelling format to young children. It was released in an App Parkinson’s Xplained by Medicine X in Australia in 2016.

A Poet with Parkinson’s

Another front burner project after retiring was writing several children’s books in rhyming text aimed at 3 to 7-year-olds. The project was shelved for lack of a publisher, and Janice turned to writing poetry.

She believes that after she worked through the initial shock of getting PD, her creative drive was activated. Although she had created rhymes for the preschool children, it was not until her diagnosis that she discovered a need to write poetry. It was a coping therapy to deal with the diagnosis. “I had a new lease on life and creative purpose,” she says. “My first poems such as A Time to Grieve were raw with emotion. I was experiencing a lot of pain and trying to regain my composure and positive slant on life.”

First Shared PD Poem

As Janice decided how and when to reveal her secret, the outcome turned out to be one of her most amazing moments as a writer. “It felt like a great weight had been lifted from my shoulders,” she recalls. Eleanor Roosevelt said, “You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.” She wrote her first poem about Parkinson’s with optimism and hope for the future and bravely posted it to a Facebook poetry group. All it took was one person hitting “like” for Parkinson’s Disease and Me giving her confidence to share  future poems with others.

Her poems continued to reflect good thoughts such as The Positive Aspect of Parkinson’s Disease. Other poems used the healing effect of humor as in Mr. Parkie. The My Parkinson’s Road Blockers addressed PD coping strategies such as gratitude.

One in a series of Parkinson’s Road Blockers

The Process

Janice prefers to write in simple rhyme that is expressive and descriptive of her personal Parkinson’s journey.  She usually adds a visual image reflective of the essence of the poem. Her hope is that by sharing her experiences and emotions, she will help someone else. You will often find her in this sunshine filled room in North Manly, Australia, working from her iPad. Her poetry  is spontaneous as she catches a thought, experience, or milestone to capture. She grew  up near Sydney and was the second eldest child of a family of eight children. With her husband, Peter of 44 years, their two daughters living away from home, and their son’s family living with them, Janice has many moments of grace to inspire her work.

Her Room for Inspiration in North Manley, Australia

Connections

As Janice  evolved as a poet, she discovered inspiration from other creative Parkinson’s people she met online. David Morse, a gifted photographer, encouraged her to keep writing poetry by placing some of her work on his sunrise images. This experience prompted Janice to explore the healing benefits of nature.

Next, David suggested she write quotes about life such as friendship, joy, and kindness. Her Live Life Quotes  have been placed on numerous photographs including those of her childhood friend, Karen Naughton.

Photo Credit: Karen Naughton…………Live Life Quote Credit: Janice Rowan

A Project Revisited

Some projects are not meant to stay on a shelf. According to William Faulkner, “If a story is in you, it is meant to come out.” In 2018, Karen helped to bring about the publication of the line of children’s books that Janice had written right after retirement. “Seeing my first children’s book published in print is one of my most amazing moments as a writer. This was an ongoing dream I had for a long time. It was on my bucket list,” says Janice. Her Understanding Parkinson’s books can be viewed on Blurb. Thousands of people will see them at the World Parkinson Congress in Kyoto in 2019, as the books were selected to be in the Book Nook!

Janice Rowan’s Children’s Series Bound for Book Nook World Parkinson Congress Kyoto 2019

Janice’s PD Blessing

Janice is busy with new  projects. A friend is illustrating a children’s book about a koala which she plans to self-publish. Two other books on fairy gardens and on a child overcoming fear are being edited. She is thinking about publishing a small book of poems. Her creative works including the past, the present, and the future provide temporary respite from Parkinson’s symptoms. The dichotomy is Janice does not believe she would be doing stories, poems, and quotes today if Parkinson’s had not come calling. “PD makes me more determined and motivated to create a sense of positive purpose with my artistic endeavors and to share these with others,” she states.

Her last stanza of A Burst of Creativity beautifully expresses the need to create.

Ones’s creative journey develops courage to take risks and to overcome fear
By exploring new ways to develop self expression in all that the heart holds dear
So the act of doing what one totally loves and is passionate about during day or night
Offers respite from Parkinson’s to improve quality of life as the creative spirit takes flight!

The blessing for Janice is a never ending circle of motivation followed by feel good therapy fueled by her creative achievements. She exemplifies how it is possible to feel more in control of Parkinson’s and to live life with purpose.

Keep InTouch

If you would like to read more of Janice’s poetry, you can find new poems in Facebook groups such as Shaky Poet, Parkinson’s Writers Group and Art and Such by PWPS. Older poems can be found on Parkinson’s Poems and Other Writings. Visit Blurb to see her line of children’s books or better yet come to Kyoto and see them firsthand. You may even meet Janice!

Question:  Of the creative works featured in Janice Rowan’s profile, which one is your favorite and why?

Blessings!

Linda

 

 

 

Aug 23

Peacefulness

mountain, lake, pine trees

Peacefulness

I wish that all of nature’s magnificence, the emotions of the land, the living energy of the place could be photographed. ~ Annie Leibovitz

I could spend the rest of my life at Yellowstone National Park and never capture every magnificent scene. But It sure would be fun trying! Joe and I vacationed there in June for the first time. We were captivated to say the least. This is one of the many scenes when I called out, “Stop here, stop here!” I am glad he did!!

Photo Credit:  Linda A. Mohr

Aug 21

How to Travel Lightly with Parkinson’s

Oxford Summer Experience 2017–My Meadows Double Gothic Window Stone Balcony at Christ Church

My packing philosophy is: Keep it light. You may have to lift it.

However, I have slowly evolved. Flashback to Paris when I was twenty-six-years old. When a taxi met us at Orly Airport, our luggage would not fit in the trunk without tying it shut. The driver was not amused! Our gold metal Halliburton luggage was heavy without contents. I had packed a different outfit for each day. My GQ partner was not far behind. What were we thinking? One leg of our journey we took a train to Portmeirion, Wales, only to discover a 1.5 mile walk into the village while dragging pre-spinner luggage!

I have not given up airplane travel since my Parkinson’s diagnosis. From 2014 through 2017, I went on sixteen trips. It is possible to lightly pack a two-week trip to England in a 25” suitcase and happily lift it, if necessary! So how do I?

Select the right clothing

First, I go shopping in my closet to consider the 4-C’s

25″ Samsonite weighs around 8 pounds before packing

  • Color—black and blue, my travel favorite, hides spots
  • Content of Fabric—lightweight, rolls up small, does not wrinkle
  • Coordination—a few pieces create multiple looks
  • Comfort—appropriate for weather changes and activities

The final wardrobe selections are made several days before a trip. My rule is the item has to be worn at least twice, unless a special occasion.

eBag cubes save space and simplify packing

Two days before departure, I roll the clothing and place in three packing cubes in suitcase. I save suitcase space by wearing a jacket with the added bonus of being comfortable in airports and planes. Walking shoes are worn and provide stable sturdy support for my travel day. The departure outfit is repeated on the return trip.

Limit accessories and toiletries

I love these space saving eBag packing cubes

As for accessories, I simplify. The only jewelry I take is what I wear which includes a classic gold bracelet, two rings, watch, brooch, and pearl earrings. One infinity scarf adds punch. One pair of flat shoes and one pair of strappy sandals are allowed. Toiletries and basic make-up and skin care are packed in travel size containers. Yes, I can survive on one tube of lipstick, blush, sun screen moisturizer, mascara, and night skin cream. A rain slicker or denim jacket and umbrella are packed in an outside pocket.

Select the right tote bag and pack it lightly

My go to cross body Baggallini bags, super lightweight

Prior to PD, I traveled with a tote bag and a handbag. Now it’s one too many things to maneuver. A medium sized lightweight nylon cross body Baggallini tote bag, with a zipper closure and inside/outside pockets works best. I can easily access tip money, credit card, identification, and travel documents in outside pockets.

The inside contents of the tote include essentials: medicine, Parkinson’s ID card, collapsible cup, pen, pencil, spiral 5×7 notebook, paperback book, lip stick, lip balm, comb, tissues, insurance card, phone, charger, camera, and snacks. I keep a master list of items  for future trips. My hobo bag is packed in suitcase.

Antoine de Saint-Exupéry is quoted as “he who would travel happily must travel light.” It sure works for me.

Keep it light! Keep it simple! Keep on traveling!

Question: What are your packing tips for air travel? I’d love to hear from you.

Blessings,

Linda

Aug 16

There’s a Tortie in the House

My Tortie Maggie Mae

I love cats because I enjoy my home; and little by little, they become its visible soul. ~Jean Cocteau

Meet Maggie Mae, my tortie. She wandered into my secluded tropical backyard in February 2017 and never left. I brought her inside a few weeks later. Tortoiseshell cats may have patches of black, brown, chocolate, amber, red, cinnamon, cream, and blue ranging from splotches to specks.  Colors may be muted as shown by Maggie Mae. Aren’t those little cream spots on her toe adorable?

Cats do not often pose when you want to photograph them. I snapped this on my iPhone as I entered the guest bedroom. Maggie Mae  was stretched out on top of a wicker bed stand. She stayed perfectly still while I took five photos. The room has lots of natural light. I generally prefer simpler backgrounds. But the backdrop of pillows inspired the caption—There’s a Tortie in the House!

Photo Credit:  Linda A. Mohr