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Conference & Meeting Notes

Davis Phinney Victory Summit, Pasadena, CA    8-10-18

I attended the Davis Phinney Victory Summit online. Here is a recap of my “take away” from the speakers. My philosophy is if I learn one new idea, have a thought reinforced or clarified, hear a witty quote, or hear something that causes me to pause for thought, then it’s been worth my time. I hope you will find a nugget or two as well.

Ryan Duncan DPT-The best exercise is the one you will do! When tailoring an exercise program, it must be safe, feasible, challenging and task specific (such as improving gait). It must also be enjoyable or you won’t do it. A physical therapist can get you started on a program. Go to to find therapist in your area as well as one that specializes in what you need.

Mark Mapstone PhD-Fear of the known is less than the fear of the unknown. Up to 50% with PD will develop some cognitive changes. Not all patients develop dementia and if they do, it is usually in late disease stage. You can have poor depth perception early on. Mental activity should be challenging such as learning to use non dominant hand. Learn something new daily.

Janis Miyasaki MD-Non-motor symptoms create an overall burden that affects our daily life. Knowledge is power. She recommends Vitamin D and B100 complex to her patients. Apathy is best treated by establishing a routine and educating family that you are not really lazy. PEG 3350 (Lax-A-Day and MiraLAX) are good choices for constipation. Replace white bread, rice and pasta with whole grain.

Tim Hague-I may not look my best today, but I am doing my best today.

Elliot Hogg MD-You should take dose of medication that supports your activities such as exercise. If medicine is not working, it may be due to poor sleep, poor absorption or illness. More than 50% of patients will develop fluctuations of response to levodopa after 5-10 years of treatment. One levodopa dose does not fit all. Diet, exercise and sleep have important roles in preventing progression of disease.

Jennifer Parkinson-PD requires inner strength. It’s okay to not be okay. Be an advocate for your care including with family and medical team. You deserve it. Be an advocate for your exercise routine and your diet as well. Use a worksheet to track symptoms and encourage discussion with care provider. Send it or an agenda in advance of appointment to get most benefit out of consultation.