Happy Valentine’s Day

We’d make a “Purr”fect Pair

My collection of “cat stuff” includes new and vintage valentines. This die cut valentine is from the 1960s. It folds and stands up.  The back shows Gladys gave the valentine to Mary Ellen. It may have been given at a school valentine party. Remember those!

This week I passed out valentines to health care workers when I had a doctor’s appointment. I gave my doctor a recycled valentine from the 1930s; a classmate had given it to my uncle over 90 years ago.  Another day I gave valentines to employees at my residence. Reactions ranged from “this is the only valentine I will get” to “I want to show this to my wife.” Some people were shocked. Others were intrigued with a recycled card. Conversations turned to memories of their school parties. I had fun celebrating Valentine’s Day.

 

Welcome to Parkinson’s My Way

Home is behind the world ahead and there are many paths to tread through shadow to the edge of night until the stars are all alight. J R.R. Tolkien

Welcome to Parkinson’s My Way

I have been a teacher and writer for over four decades. When I was diagnosed with Parkinson’s disease in 2014, my work and literary world became one with the Parkinson’s world. Isak Dinesen believed “all sorrows can be borne if you tell a story about them”,  and I have found that to be true. Writing has always been my “go-to tool” for facing adversity.

Parkinson’s My Way is how I journey one day to the next with a chronic, progressive degenerative illness by keeping my interests alive. Days are rarely alike. A  variety of interests that still define who I am include antiques, travel, baking, animals, nature, reading, photography, family farm, education and DAR.

Along the way, I discovered a fascinating gift of this perplexing neurological disorder. Studies find some people with Parkinson’s begin a new creative pursuit such as painting, sculpting or writing. For me it is poetry. This website will share “creativity in motion” by showcasing people with Parkinson’s artistic work, as well as mine.

Before PD, my personal mission was “to make a heartfelt difference” and that is unchanged. Through my sharing in Parkinson’s My Way, the intent is to educate, to inspire, and to give hope.  Some posts will deal with Parkinson’s head on. Other times I will bake a cake or recommend a good book!

If just one of you benefits from my thoughts, experiences, recipes, poetry or photography, I will consider this mission a success. Perhaps you have Parkinson’s disease or are a caregiver. Maybe a friend of yours was just diagnosed with PD. Whatever the reason that you are visiting, I welcome you and your comments.

Blessings!

Linda

Happy New Year


A Mewsical Party

A word art display advises me to Laugh More and Stress Less. This Tuck postcard featuring amorphized cats makes me laugh. Stress exacerbates Parkinson’s.  Anything I can do to minimize or eliminate stress helps me live my best life now.

Raphael Tuck & Sons used to be the world’s largest postcard publisher. The card company offered a unique history of life in the late 19th and early 20th century.  A series of six cards made up A Mewsical Party. The oilette was produced in Bavaria in 1911 and 1912. It was first published by T.S.N. Dresden in 1852.

During World War II, company headquarters were destroyed including greeting cards, postcards, records and originals. TuckDB Postcards is a non-profit attempting to recreate the lost records.

14th Annual ABCs of Gratitude 2023

 

A Knight to Remember

2017 Fundraiser SCC Athletic Department         Left brother Larry, me, Coach Knight, brother Steve

“Let us be grateful to the people who make us happy; they are the charming gardeners who make our souls sing.” ~~Marcel Proust

My ABCs of Gratitude for 2023

In keeping with my tradition, here is my gratitude list for 2023. I enjoy the challenge of working with ABCs. But you could use the word Thanksgiving or the initials of your name. Some years I notice a theme. This year nineteen of twenty-six blessings are people ranging from family, friends, relatives, doctors, colleagues, and feline friends.  The list reminds me how important my interactions and relationships are.

Alison and Eleanor…West Palm Beach friends come to visit

Brain Surgery…right and left electrodes powered up

Chand…movement disorder specialist

Donna…best sister ever

eBay customers… love to hear about their collections

Fur Babies…5 of 6 siblings celebrated 13th birthday

Groh…my 91-year-old aunt and cousins visit

Hobby…new pastime designing tablescapes

Interview…Tatianna interview republished by T.J. Banks

Joe…my gem

Knight…saddened legendary Coach Knight is gone, but blessed I met him in 2017

Larry…best brother who taught me devotion and unselfish love

Michelle…dear friend and Northwood University virtual colleague

Neck Dystonia…good-by, thank you DBS

Orange cat…a blessing, I loved you to the moon and back

Personal Assistant…Laurie extraordinary helper

Quiet…17th floor home only has one other tenant

Rose…angel earth kitty who is brave and resilient

Steve…other best brother and the best cat dad ever

Tuttle…person who hired me at Northwood University

University…retired from Northwood with 35 years of service

Vienna Boys Choir…Attend concert at St. Louis Cathedral

Writing… winning 1st for nonfiction entry–Rose and Her Six Kittens

Xadago… Parkinson’s med that keeps me moving

Yams…Thanksgiving menu favorite

Zen…have fleeting moments for which I am blessed

What are you thankful for in 2023?

Blessings!

Linda

 

 

 

Happy Valentine’s Day

The Movie Star Look

One of my favorite hobbies is photographing my cats Chauncey, Grace, and Maggie Mae. I also like to go on photo shoots with their siblings when I visit my brother in the country. The tuxedo cat Boots understands  when I say “let’s go on a photo shoot.” He prances, climbs, struts, and sits. He loves to pose and hold a gaze. He is so easy to photograph. I created this card last year from a photo taken in 2018. My brother named him Boots as a kitten and later nicknamed him “Movie Star” after he won an award. I call him Bootsie and simply adore him.

Blessings!

Linda

Seminole Annual Benefit Auction

Auction Items

Browse, Bid, Buy

Never doubt that a small group of thoughtful committed citizens can change the world: indeed, it’s the only thing that ever has. ~~Margaret Mead

How about adding  an interesting and worthy event  to your weekend by visiting a virtual auction that supports historic preservation, education and patriotism! Seminole Chapter, National Society Daughters of the American Revolution (of which I am a proud member) is trying a new way to conduct our annual traditional benefit. We are determined that a pandemic is not going to stop our support to our charitable projects.

The auction is open to everyone through Monday, March 22, 8 PM EDT. You do not have to be a NSDAR member or pay to join the auction. Let your family and friends know. From Swarovski earrings to fitness equipment, butterfly gardening, handwoven shawl and ice cream basket, you will find a wide array of unique selections for all ages. If you are not in the West Palm Beach area, we will ship to you. If you are being out bid, you will be notified and have the opportunity to raise your bid. That has happened to me several times already.  I admit it’s a bit of an adrenaline rush and I bid again!

Please click 2021 Annual Benefit to browse the items up for auction.

Photo Credit: Dara Hatten, Benefit Chair

Blessings!
Linda

11th Annual ABCs of Gratitude 2020

Grace Blesses My Office

“Gratitude can transform common days into thanksgivings, turn routine jobs into joy, and change ordinary opportunities into blessings.” ~~ William Arthur Ward

In keeping with my annual Thanksgiving month tradition started in 2010, my ABCs of Gratitude for 2020 are listed below. This pandemic year is unprecedented; however, I still found 26 blessings.

My ABCs of Gratitude for 2020

Alison…friend and nurse practitioner

Black Cats…Halloween display

Chauncey…watching out for me

Deliveries…on my doorstep

eBay…my supporting customers

Friends & Family…their love

Grace…bringing me her toy gifts

Home…my safe haven

Injections…dystonia control

Joe… grocery shopping since March

Kitchen…creating new and easy dishes

Library…2 blocks from my house

Maggie Mae…beloved Tortie makes me laugh

Nature…calming effect

Oregano…thriving in my wee garden

Parkinson’s Team…awesome professionals

Quiet Time…to just be

Rest…knowing when I need to pause

Solitude…renewing my spirit

Treasurer…Daughters of American Revolution

University…still working with students

Victory…staying safe and well during COVID-19

Walking…a favorite way to keep moving

Xadago…a new Parkinson’s med

Yellow Mums…punch of color at my front door

Zoom…staying connected during pandemic

What are you thankful for today and for this year?

Blessings!
Linda

 

Memories of My Father

My favorite photo of my father and me goes way back to 1953.  He was thirty-five and I was three-years- old. He was dressed in his favorite attire as baseball was his life’s passion. Later I understood hitting a baseball was his God given talent. This sport made its way into my heart. When I  remember my father, baseball is always part of the memory bank.

 

 

 

Grandma’s Teachings: Honor Loved Ones on Decoration Day

I am a part of all that I have touched and that has touched me. ~Thomas Wolfe

My most precious memory of my grandma, Charlotta Estella Seyb Mohr, is spending countless hours by her side at an impressive round oak pedestal table with animal claw feet. I adored her and enjoyed spending time at her home in rural Missouri. That was real easy to do since she  lived about a mile where I grew up.

Family life centered on the heartbeat of the house. What she taught me remains part of my being. I close my eyes, and the table turns into a flower shop on Decoration Day (a day dating back to 1868). We tour her beautiful gardens and pick fragrant spring flowers such as peonies, poppies, irises, snowballs and bleeding hearts. Grandma prays nature will hold the rain for the weekend to preserve these fragile flowers. We make a list of loved ones whose graves we will visit and adorn. Then we arrange the flowers in vases and buckets.

Always Honor Your Loved Ones

“Always honor your loved ones,” she says. I learn that red poppies symbolize remembrance of those who have fallen in war. Grandma’s faith sustained her after losing her mother at age two and her younger brother in World War I at age twenty-two. I choose pink peonies to memorialize my great-grandmother Charlotta. Red poppies blaze on my great-uncle Rupert’s grave.

The Why Behind Red Poppies

When I was older, I learned more about the significance of the red poppy. In 1918, Moina Michael bought a bouquet of poppies and handed them out to businessmen at the New York YMCA because of the poignant effect the poem In Flanders Fields had on her. She asked them to wear the poppy as a tribute to the fallen Americans in World War I. She led a campaign that designated the poppy as the official flower of The American Legion in 1923.

During World War I, American soldiers were buried in the pastures and on the battlefields of Europe, where bright red poppies grew wild among the fresh graves. While caring for the wounded near one of the battlefields, a Canadian doctor, Lt. Col. John McCrae, jotted down these opening lines: “In Flanders fields the poppies blow/ Between the crosses, row on row. . .”

The American Legion Auxiliary is recognized as the world’s largest women’s patriotic service organization. Thousands of crepe paper poppies made by disabled and hospitalized veterans are given out for donations to benefit disabled veterans.

Photo by Bob Fehringer, USTRANSCOM/PA

Video Reading of In Flanders Fields

In 2015,  Legion Magazine and Leonard Cohen released  a powerful video reading of In Flanders Fields on YouTube to commemorate the 100th anniversary of the poem by Lieutenant-Colonel John McCrae. Cohen’s voice is accompanied by stirring imagery from the First World War and helps me to understand what my two heroic great-uncles experienced.

In Memory of My Great-Uncle Rupert Seyb

PVT. RUPERT C. SEYB

My great-uncle, Rupert Carl Seyb, enlisted in Sanborn, South Dakota, on June 5, 1917. He served as a private in Company F, 350th Infantry. 88th Division with American Expeditionary Forces. He was sent to Camp Funston, Kansas and Fort Dodge, Iowa for a short time.  He sailed from Long Island, New York to France in July, 1918.  He died due to valvular heart disease and  influenza in Naix, France, on February 23, 1919, at twenty-six years, two months, sixteen days. He is buried at Saint Paul Cemetery near Kahoka, Missouri.

Honoring his place of death, Naix, France

Rupert Seyb Memorial Card

In sunny France

there came a chance

To test his soul in blood:

He didn’t stop–but o’er the top

He went–and he made good.

And that is why we dare not cry

As his brave soul passes on;

His name’s enrolled on Fame’s

bright scroll

Our glorious valiant son.

Rupert C. Seyb Grave Stone

In Memory of My Great-Uncle Carl Roasa

PVT, CARL A. ROASA

My great-uncle, Carl A. Roasa, was inducted into the Army/Marine unit on July 5, 1917, in Kansas City, Missouri. He served overseas from May 20, 1918, until January 17, 1919, where he died in France of pneumonia at twenty-two years, ten months, eight days. His parents, Albert and Laura Roasa, bought land, planted trees and started Granger Cemetery for the burial of Carl Albert. He was the youngest of six children including five boys and one girl. I read in Carl’s war records that his mother was notified of his death. Although I never met my great-grandmother, I can picture her receiving this devastating news of her beloved son, and my heart breaks.

Carl A. Roasa’s Grave Stone

Carl’s memorial card included this beautiful James Whitcomb Riley poem:

I cannot say and I will not say
That he is dead—He is just away!
With a cheery smile and a wave of the hand,
He has wandered into an unknown land,
And left us dreaming how very fair
It needs must be, since he lingers there.
Mild and gentle, as he was brave
When the sweetest love of his life he gave.
Think of him as the same I say:
He is not dead—He is just away.

A Soldiers’ Memorial was established near the Scotland County Courthouse in Memphis, Missouri, in 1923, led by the Betsy Ross Club. Other organizations joined forces including Home Guards, Order of the Eastern Star, and Mothers of Soldiers. The names of the soldiers who made the ultimate sacrifice from the area were chiseled on the memorial pillars. The honor roll of twenty-five soldiers included Carl A. Roasa. The engraving reads “In memoriam to the boys from Scotland County 1914 ~ World War ~ 1918, they gave their all for liberty and democracy.”

Soldiers’ Memorial

Honor Roll

On this Memorial Day weekend,  I pause to reflect on what my two great-uncles’ service and their ultimate sacrifice mean to my life, and I am deeply grateful.

In my mind’s eye today, grandma is watching me arrange pink peonies.

“Your bouquet is breathtaking,”

“Thank you grandma!”

Blessings!
Linda

 

 

 

 

13 Tips for a Successful Telemedicine Appointment

1950 House Call

I grew up in the 1950s when doctors made house calls. My mother rang up an operator from a wooden telephone on the kitchen wall and was connected to Doc Gray. Although we lived four miles from town, she took care of us day or night. I remember Doc Gray sitting on the edge of my bed and watching over me when I had the mumps, measles, chicken pox and flu. Her black bag and pink liquid medicine intrigued me as she was never without either one. Although I was sick and often was given that icky pink stuff, I liked Doc Gray to come to the house.

2020 Virtual Call

Seventy years later, a telephone still connects me to a doctor. But a few things have changed. A phone is now smart, and a house call is virtual. The Center for Medicare and Medicaid Services expanded telemedicine coverage due to COVID-19. During a six-week period in April and May, I had three telemedicine appointments using digital technology. From the safety and convenience of my home, my healthcare providers observed my condition, assessed medication changes, conducted a neurological exam and transmitted a prescription.

13 Tips for a Successful Telemedicine Appointment

1. Get specific instructions on how the appointment will be conducted? Will it be FaceTime, a Zoom meeting or some other app? Is it best to use your smartphone, tablet, laptop or desktop computer?

2. Download any necessary apps and test in advance. If you encounter difficulties, contact your healthcare provider for additional help. Practice again. For example, if your provider is going to use Zoom, you could do a practice meeting with a family member.

3. Plan in advance where to set devices for clear images. Take into consideration lighting and glare. Is anyone else going to be in the room? How does seating area look? Do you need to remove clutter?

4. If you have journal notes that you want the provider to review in advance, arrange the transfer with office personnel.

5. Prepare just as you would for an  office consultation. What are two or three questions that you need to ask? Review notes from last visit. What has changed? What follow-up questions can you expect your provider to ask you?

6. Be aware if you need any prescriptions refilled.  Request 90-day prescriptions. Have the name of the pharmacy, phone number and drug bottle handy.

7. Record your weight, blood pressure and temperature prior to appointment if these procedures would commonly be done in office. If you do not have a blood pressure cuff, you will find a wide selection online. Your provider may also want to watch you take blood pressure, sitting and standing. Keep cuff nearby.

8. Inform other household members to avoid interruptions. Arrange to have someone on standby to operate the camera if your provider conducts an examination.

9. Charge electronic devices and check connections prior to appointment.

10. Situate ten minutes prior to start of appointment. Have pen, paper, notes and water handy. Quiet the area by turning off background noise. Move curious pets and/or children to another room. Power up any needed devices. Do 1-minute deep breathing calming meditation.

11. Be clear at end of appointment what happens next? Will staff call you to schedule follow-up appointment? How is payment handled? When will prescriptions be transmitted?

12. Be patient. It is not unusual for there to be technical challenges. Both your healthcare provider and you are learning together.

13. Treat the telemedicine appointment as the real deal. Be willing to give it a try even though this tool has not been readily available to you prior to COVID-19. You may discover this time-saving, hassle-free alternative is right for you.

For further information regarding coverage, visit https://www.cms.gov/Medicare/Medicare-General-Information/Telehealth/Telehealth-Codes

Blessings!
Linda

The post 13 Tips for a Successful Telemedicine Appointment appeared first on Parkinsons My Way.

 

 

 

Happy Mother’s Day

Linda and her mother

Mother and Linda at Hotel Nauvoo 6-7-09

Mother, mom, ma, mamma, mommie, or mum…..I called my mother “mother” as did my sister. My brothers called her “mom”. When I was a little girl, I called her “mommie”.

This beautiful mother quote found at Cracker Barrel resonates with me.. “Mother…she not only gives us life, she teaches our souls to sing”.

The passage reminds me of another quote I found on our annual mother-daughter summer jaunt. After visiting the Field of Dreams in Dyersville, Iowa, in 2006, we stopped at Country Junction Restaurant. The perfect sentiment to honor my mother, our trip and our precious time together was embroidered on small pieces of red and tan gingham and displayed in a rustic frame:

“All that I am or hope to be I owe to my mother”—Abe Lincoln

A Mother’s Perspective

Then we have a mother’s perspective in the following powerful quotes: “Before you were conceived I wanted you. Before you were born I loved you. Before you were here an hour, I would die for you. This is the miracle of love.”—Maureen Hawkins

“When you were small and just a touch away, I covered you with blankets against the cold night air. But now that you are tall and out of reach, I fold my hands and cover you with prayer.”—Dona Maddux Cooper.

My Mother’s Day Ritual

This is my 11th Mother’s Day without her. She passed away on July 1, 2009, less than four weeks after the above family photo. Precious memories of my dear mother sustain me today along with a prayer and poem ritual. With folded hands, I send her a prayer:  “Thank you for teaching my soul to sing. May God keep you always in His loving embrace.”

Lilacs were her favorite spring flower. We had purple and white lilac bushes at the farm house. By a heavenly miracle, a sprig or two of white lilacs burst into bloom seventy years later my brother reports!

Memories

by Mildred M. North

Again the lilac blossoms sway
Above the windowsill,
And every white or purple spray
Exotic perfume spills.

Again the orchard rows are sweet
With drifts of blossom snow,
And every breath of fragrance fleet
Brings thoughts of long ago.

So clear, so precious, memory sees
The old home, Mother dear,
And lilac blooms and apple trees–
The joys of yesteryear.

Blessings!
Linda