My mother sipped water all day. She always kept a plastic glass of ice cold water by her chair when she was in the living room and on the counter when she was in the kitchen. She insisted on cold water and made a face when the water turned “soupy” as she described! I can …
Category: About PD
Feb 19
Too Many Medical Appointments
Where Did My Day Go? I knew I spent lots of time going to medical appointments. All I had to do was ask the question, “Where did the day go?” However, this year I decided to maintain a monthly medical time log and record the exact hours. Medical Appointments Time Log My medical log includes …
Feb 05
Great Courses Help Manage Parkinson’s
The Great Courses…World’s Greatest Professors at Your Fingertips is currently offering significant sales including up to 90% off some offerings. Only the top 1 in 5000 college professors is chosen to be on the faculty. If the benefit of hundreds of lifelong learning courses with no homework, no tests, and no grades plus a variety …
Feb 01
Live Life Each Day With Parkinson’s
Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand…and melting like a snowflake. Let us use it before it is too late. ~Marie Beynon Ray Students in a sewing class, a woman with a cane, and a …
Jan 21
2018 Reflection Leads to 2019 Intention
I celebrate my birthday for a month. However, I do not set New Year’s resolutions. Since my birthday is in January, I use the month to reflect on the previous year’s highlights. What gifts, blessings, and accomplishments came my way? What went well month by month? I also consider the lowlights. What didn’t turn out …
Jan 09
Dr. Michael Okun Parkinson’s Consultation
Traveling to Movement Disorder Specialist I was excited to be on a Sunday road trip on December 2, 2018, to Gainesville, Florida to meet Dr. Michael Okun, world-renowned movement disorder specialist. In 2002, Dr. Okun and Dr. Kelly Foote formed the University of Florida Health Center for Movement Disorders & Neurorestoration to bring together experts …
Dec 11
Preparing for First Visit with Movement Disorder Specialist
I am responsible for preparing for first visit with my movement disorder specialist to help achieve successful results. According to the Davis Phinney Foundation, Every Victory Counts manual, “being prepared for your medical visit is by far one of the most important and least performed self-care tasks.” The best advocate for my unique Parkinson’s care …
Dec 05
Parkinson’s Treatment:10 Secrets to a Happier Life
Parkinson’s Treatment: 10 Secrets to a Happier Life By Michael S. Okun, M.D. Published 2013 Within a couple of weeks following my 2014 PD diagnosis, Parkinson’s Treatment: 10 Secrets to a Happier Life was the first book I read. Dr. Okun’s book was the right one for me at the right time. The aim of …
Oct 25
Kirk Gibson Challenges Parkinson’s
Since it is World Series week, I can’t pass up the chance to write about one of my great loves—baseball. However, I am not writing about this year’s contenders, Los Angeles Dodgers or Boston Red Sox. But in a roundabout way, this relates to the Dodgers. Rewind to 1988 Kirk Gibson of the LA Dodgers …
Oct 16
Managing Parkinson’s with White Space
I vowed not to over schedule my days when I semi-retired in June of 2013. I wanted more white space on my calendar. A year later I discovered this was not only a sensible way for me to live, but the only way to live with Parkinson’s. Over Scheduled I left a demanding academic dean’s …