Category: About PD

Preparing for First Visit with Movement Disorder Specialist

words success meets preparation on blue background

I am responsible for preparing for first visit with my movement disorder specialist to help achieve successful results. According to the Davis Phinney Foundation, Every Victory Counts manual,  “being prepared for your medical visit is by far one of the most important and least performed self-care tasks.” The best advocate for my unique Parkinson’s care …

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Parkinson’s Treatment:10 Secrets to a Happier Life

Parkinson’s Treatment: 10 Secrets to a Happier Life By Michael S. Okun, M.D. Published 2013 Within a couple of weeks following my 2014 PD diagnosis, Parkinson’s Treatment: 10 Secrets to a Happier Life was the first book I read. Dr. Okun’s book was the right one for me at the right time. The aim of …

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Kirk Gibson Challenges Parkinson’s

Since it is World Series week, I can’t pass up the chance to write about one of my great loves—baseball.  However, I am not writing about this year’s contenders, Los Angeles Dodgers or Boston Red Sox. But in a roundabout way, this relates to the Dodgers. Rewind to 1988 Kirk Gibson of the LA Dodgers …

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Managing Parkinson’s with White Space

 I vowed not to over schedule my days when I semi-retired in June of 2013. I wanted more white space on my calendar. A year later I discovered this was not only a sensible way for me to live, but the only way to live with Parkinson’s. Over Scheduled I left a demanding academic dean’s …

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Zentangle Calms Artist with Parkinson’s

  Frances Bertles showed her creative side during childhood when she made mud cakes with her brother. She was quick to make the distinction between mud cakes and pies. “You can decorate mud cakes, but you can’t cut mud pies.”  Later she was destined to decorate Zintangles and boxes. Frances grew up in Conway, a …

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Benefits of Top Parkinson’s Websites

laptop keyboard, fingers typing

Introduction to Parkinson’s Web-Based Research Researching Parkinson’s can be an overwhelming undertaking. If you have recently been diagnosed, questions abound! Where to start and who to trust can stop you before you get started. Maybe it is better not to know. The other extreme is to read anything and everything with the word “Parkinson’s” leading …

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Connections by Janice Rowan

Since you cannot do good to all, you are to pay special attention to those who, by the accidents of time, or place, or circumstances, are brought into closer connection with you. ~ Augustine of Hippo I connected with Janice Rowan through a Parkinson’s Facebook group and knew I had to interview her.  Her unique …

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Parkinson’s Identification Card

“No, I’m not intoxicated. I have Parkinson’s.” I have not had to convince anyone of this notion, but I have known of people who have. A Parkinson’s identification card can ease the situation and get help. If you see me wobbling, stumbling, or unable to stand, I am in a “wearing off” period before my …

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Creative Life of Poet with Parkinson’s

  The Positive Trade-Off Janice Rowan gave up her love of teaching preschool children due to the progression of Parkinson’s disease. She turned retirement from her 26-year passion to what she calls the positive trade-off—when one is prepared to work with and not against PD. In 2009, she noticed her handwriting getting smaller, and she …

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Brain Exercise and Parkinson’s

Did you exercise your brain today? What is something new you learned today? Up to 50% of people who have Parkinson’s disease will have some cognition change. Being slower in mental processing, having trouble multi-tasking and being forgetful are a few examples of this non-motor symptom. Mark Mapstone, PhD of University of California Irvine spoke …

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